40 Sickle Cell News

SPECIAL EDITION ON BONE MARROW TRANSPLANT

1. 'By the age of two, our son had osteo-arthritis, heart wall weakness, vascular crises and what-not. We knew our genotype before we got married, we got married anyway - we will live with guilt for the rest of our days if we did not find a solution to our son's sickle cell troubles!'
2. 'I almost died when my daughter was diagnosed at the age of seven months after presenting with swollen limbs. The meningitis and other issues followed. Despite it's risks, I would advise any family that can afford it to go for BMT.'
3. 'The church only asked for an HIV test. At six months, my son was diagnosed with sickle cell anaemia. At 12 years, the doors of hell were flung open. Even though it rendered us penniless, we had no choice than opt in for BMT!'
4. Oldest sickle cell warrior ever to undergo BMT at 38 years is now 50 years old and waxing stronger!
5. Irate Hungarian-trained medical doctor visits office of producer of herbal supplement guaranteed to boost blood levels in days ('to give them a piece of my mind'). He soon became an apostle of the product after testing it on a Jehovah's Witness child on the verge.
6. How schools can support children living with sickle cell.
7. As of 2017, 88 people lived with sickle cell anaemia in Bermuda
8. Medicine or Nothing - how little sickle cell warrior who dreamed of having a stethoscope draped around his neck achieved his ambition.
9. Medical doctor and laboratory scientist wife did not know their genotype prior to marriage. Dire consequences were to follow ...