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70 - Sickle Cell News April-June 2025
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- At 89, Agboola Anifowose is living proof that sickle cell disease does not have to define the length or possibilities of a life, and his extraordinary journey from Nigeria to America and back provides the heart of this edition.
- His remarkable claim that gallbladder surgery dramatically reduced his sickle cell crises opens an intriguing medical debate over whether there may be more to the connection than coincidence.
- The edition explores the wider implications of genotype, from Anifowose’s family experience to the urgent case for genotype verification and informed reproductive decisions.
- Nigeria’s return to the global Sickle Cell Congress after 40 years provides another major focus, highlighting the country’s burden, its growing leadership in advocacy and research, and the landmark bone-marrow transplant achieved locally.
- We look at the rapidly changing treatment landscape, including gene therapy and emerging genetic technologies that are reshaping expectations for inherited disorders.
- Beyond SCD, the edition broadens the inherited-blood-disorder conversation with International Thalassemia Day and the global campaign for better awareness, screening, treatment and research.
- From Anifowose’s 89-year survival story to the experiences of Warriors such as Kye Gbangbola and Agnes Anifowose-Odunsi, this is an edition about survival, family, science and the continuing fight to change what sickle cell disease means for those who live with it.