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73 Sickle Cell News
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- India is attempting something few countries have tried at comparable scale: a national mission to reduce the burden of sickle cell disease through systematic screening, diagnosis, counselling and care.
- This special edition examines the Sickle Cell Elimination Mission from the inside, asking what it means to turn an ambitious national policy into a functioning health system.
- Particular attention is given to India’s tribal communities, where geography, poverty, limited healthcare infrastructure and long-standing mistrust can make the journey from screening to sustained care especially difficult.
- We examine the systems behind elimination — data, registries, blood services, healthcare capacity and coordination between government, communities and partners — because finding people with SCD is only the beginning.
- The edition also confronts the question of equity, particularly whether revolutionary treatments such as gene therapy can ever become meaningful options for populations that already struggle to access basic SCD care.
- Thalassemia forms an important part of the wider Indian inherited-blood-disorder story, highlighting the common challenges of screening, transfusion, prevention, treatment and patient-centred care.
- Ultimately, India’s experience offers a question for the world: can the burden of sickle cell disease really be eliminated without losing sight of the people, communities and health systems that must carry the mission forward?