# Before the Crisis Comes: A Practical Guide to Living Prepared with Sickle Cell Disease

Living with sickle cell disease can sometimes feel unpredictable. But being informed, organized, and prepared can help you respond more confidently when your health changes.

Before the Crisis Comes is a practical, easy-to-understand guide created to help people living with sickle cell disease and their families better understand the condition, recognize important warning signs, prepare ahead, and know when professional medical attention may be needed.

Instead of waiting until a crisis occurs before thinking about what to do, this guide encourages you to prepare before the crisis comes.

## Inside the Guide, You Will Learn:

- What sickle cell disease is and how it affects the body;

- Why knowing your personal steady state matters;

- Common situations and factors that may contribute to complications;

- How to recognize green, amber, and red warning signs;

- What different types of sickle cell crises may look like;

- When symptoms require prompt medical assessment;

- How to prepare a personal sickle cell action plan;

- Important health information you should keep readily available;

- Practical ways to become more organized and prepared;

- How family members and caregivers can provide appropriate support;

- Important questions to discuss with your healthcare team; and

- Practical strategies for navigating life with sickle cell disease more confidently.

## 🎁 AND YOU GET 2 BONUS RESOURCES!

### BONUS #1: The 90-Day Sickle Cell Workbook

A practical companion workbook designed to help you put the lessons from the main guide into practice.

Use it to organize your health information, reflect on your experiences, identify patterns, plan ahead, and build practical habits around your sickle cell care.

### BONUS #2: 100 Frequently Asked Questions on Sickle Cell — With Explained Answers

Have questions about sickle cell disease?

This bonus resource brings together 100 frequently asked questions and provides clear, easy-to-understand explanations from a medical perspective.

It is designed to help you better understand common concerns and have more informed conversations with your healthcare team.

## Who Is This Guide For?

Before the Crisis Comes is particularly useful for:

- People living with sickle cell disease;

- Parents and caregivers of children with sickle cell disease;

- Family members supporting someone with sickle cell disease; and

- Anyone who wants a practical educational resource to better understand sickle cell disease and prepare for potential health challenges.

## Why This Guide?

Because preparation is easier before an emergency.

This guide is not intended to replace your doctor, hospital care, or individualized medical advice. Instead, it is designed to help you become better informed, better organized, and better prepared to recognize concerning changes and seek appropriate medical care when necessary.

### Your health deserves preparation — not panic.

Get your copy of Before the Crisis Comes today, and take the first step toward becoming more informed, organized, and prepared.

Health Pulse